Thank you for taking time to respond to this survey. We value your experience and your participation in this project. To thank you for your participation, you may choose to enter for a chance to win one of ten $50 Amazon gift cards upon completion of the survey.
About this Survey:
The U.S. Food and Drug Administration (FDA) has placed a high priority on hearing directly from individuals with lived experience about what it's like to live with medical conditions. On September 23, 2019, ﬁve organizations serving the atopic dermatitis (i.e. eczema) community (listed below) will host the "More Than Skin Deep" meeting so that the FDA can hear directly from people living with eczema and their family members about their experiences.
This survey provides a way for people living with eczema (either as a patient, family member/caregiver, or both) to share their experiences with the FDA, researchers, and the hosting organizations. It is designed to collect information about symptoms, impacts on daily life, and how individuals are managing their condition with medical and supportive treatment approaches. These are the topics that FDA is most interested in, to help them understand patient and family/caregiver perspectives as medical products (medications, medical devices, etc.) are being evaluated for safety and eﬀectiveness.
Here is some additional information to keep in mind as you go through this survey:
If you are a person with eczema or a family member, partner, or caregiver (someone in close regular contact with the person living with eczema), we welcome you to participate in this survey and the September 23, 2019 meeting - in person or by webcast. (You can learn more about it at MoreThanSkinDeep-Eczema.org).
All responses are anonymous and completely conﬁdential. We are not requesting or collecting any identifying information that can be traced back to individual respondents.
Answer questions to the best of your ability. Only the ﬁrst question requires an answer to proceed; the rest are optional and voluntary.
You can work on the survey a bit at a time and your answers will be saved as you move from page to page.
There are 3 sections of the survey. Depending on how much information you choose to share in the open comment ﬁelds, the survey may take 20-30 minutes to complete. Please pace yourself.
Demographic information is requested only to help us understand a range of varying perspectives that might be shaped by diﬀerent backgrounds and experiences.
We will share interim results of the survey at the September 23 meeting and will include an analysis of ﬁnal results in the meeting report that will be made publicly available as a lasting resource for FDA, medical product developers, other researchers, and the eczema community.
We greatly value your perspective and the time and energy you'll invest. Please feel free to share the survey link with others whose lives are aﬀected by eczema, including your own family members and caregivers.
If you are willing to participate, please continue to the next screen. If at any time, you do not wish to participate, please close the survey screen.
If you have any questions, please contact info@eczemaPFDD.org.